Consumer Advisory Committee (CAC)
The CAC celebrating NPS +90 in this photo because it’s important to celebrate success!
GenesisCare recognises that one of the best ways of enhancing quality of care is to listen to and partner with people who have experienced cancer and its treatments.
Using this experience, our consumers provide advice and make an active contribution as key partners in the planning, delivery and reform of our services, by working with us as part of the National Consumer Advisory Committee (CAC).
Consumer Advisory Committee Strategic priorities:
|Consumer Advisory Committee Strategic Priorities|
|1. Consumer Choice||To reinforce to potential patients that they have the right to make choices.|
|2. Communication training||To highlight the importance of ongoing soft skill training programs with a particular emphasis on the importance and impact of communication on the patient experience.|
|3. Information availability||To ensure accurate, reliable and consistent information is available to all consumers so they can make informed decisions about treatment.|
|4. Allied Health support||To advocate for support services designed to facilitate holistic care for consumers.|
|5. Involve the support person||To encourage the participation of carers in all phases of treatment.|
|6. Aftercare||To promote the provision of a holistic aftercare mentoring program to help bridge the 'what next' gap and help reduce feelings of vulnerability upon finishing treatment.|
|Consumer Advisory Committee Progress Report - November 2017|
|1. Consumer Choice||On track. New marketing and referrer engagement team on boarded to educate referrers about the benefits of radiation therapy and improve awareness about GenesisCare.|
|2. Communication training||On track. Psycho-oncologist has been engaged to deliver a series of short sharp workshops to the GenesisCare team. The focus of these workshops is on building resilience and improving collaboration amongst staff members. A set of tools is provided for best practice communications with patients.|
|3. Information availability||On track. As per point one above, in line with the rebrand there will be a renewed focus on provision of relevant, helpful information to patients with a focus on video.|
|4. Allied Health support||Outstanding. There is a plan in place to develop and allied health framework in 2019-2020 which will investigate a sustainable financial model.|
|5. Involve the support person||Outstanding. There is a 3 phase approach for catering for the needs of carer's. Phase 1 will be completed by FY2019. This phase will focus on providing information and resources to the support person who we see as vital to the care of patients.|
|6. Aftercare||On track. GenesisCare has collaborated with Cancer Council NSW to roll out a series of survivorship programs called ENRICHing Cancer. This state-wide pilot will inform our overall approach to aftercare.|
Meet our Comittee
Carol’s husband, Peter, was diagnosed with Bowel Cancer 10 years ago, she accompanied him to hospital visits, chemotherapy and radiation therapy sessions, scans and doctors’ visits. Having had her father die of cancer at home 26 years ago and acting as her husband’s carer, Carol hopes to use her experiences to help anyone who finds themselves in the same position. If she is not babysitting her grandchildren she might be on the golf course, walking, swimming, volunteering at the local art theatre or serving as Justice of the Peace. Carol retired in 2003 after helping manage a family run pharmacy, as an accountant, for 30 years. She hopes that the combined experiences of the committee will help others through their cancer journey.
Following a diagnosis of prostate cancer in 2006, Doug received High Dosage Brachytherapy treatment and External Beam Radiation Therapy. Five years later his pelvic lymph nodes were radiated when new equipment allowing pin-point accuracy became available. Working as an electrical engineer and now project manager with a Swiss multi-national company, his work specialises in electrical interconnectivity products and solutions. Doug is in his element when working with wood; custom picture framing and making fine acoustic guitars helps him to release his creativity. He strongly believes in the importance of a holistic approach to cancer treatment and is keen to contribute ideas whereby future patients are able to receive excellent treatment and care regardless of which state or country the care is administered.
Ken is a survivor of an aggressive prostate cancer. He recognises that people can benefit from a greater understanding of cancer through better communication and support. Ken is a business and finance professional who enjoys helping people budget their finances. He has been a volunteer committee member with numerous community support groups, a member of public speaking clubs, and had a hobby oyster farm in Northern NSW. He believes that with a good attitude, great support and by embracing the best treatment available there can be many more survivor stories like his. He hopes that his work with the Consumer Advisory Committee will help empower individuals to have the will and resources to do the very best for themselves.
Denise Mc Gowan
Denise was diagnosed with Breast Cancer in the right breast resulting in the need for a lumpectomy followed by radiation therapy. She strongly believes in the importance of considering the emotional and physical side effects and to have a strategy in place to ease patient concerns. Denise is passionate about giving more insight into the difficulties that patients may face. She has worked as a personal assistant to a Financial Planner for the last 13 years and in her spare time is the treasurer of her local Football club, and helps with fundraising. Her main focus with her work on the Consumer Advisory Committee is letting people know that they have a choice when it comes to treatment options.
Pat is a survivor of cancer, she initially noticed a pimple on her face which was eventually diagnosed as a malignant tumour. Aged 74, Pat loves helping people and spending time with her family, she previously ran a business for over 10 years with her late husband. She hopes that her life threatening experience and the Consumer Advisory Committee will be able to help future patients access the support they need while having their treatment. Pat is excited to be involved in this worthwhile venture as it will be invaluable and helpful to other patients.
John and his wife Beverley were looking forward to an active and enjoyable retirement when John was diagnosed with advanced prostate cancer in 2013. Following surgery, radiation and ADT, John is now looking forward to a successful long-term outcome with recent results showing no cancer cell activity. Spending his working life in corporate sales and marketing, John is now involved with a number of local community and charitable organisations. He is finally enjoying his retirement by dancing with his wife, appreciating music, theatre and literature and being poppy to his three grandchildren. He hopes to define and articulate improved environments that may help to minimise the traumas commonly accompanying patients on this path; teaching and enabling them to live with confidence and hope in spite of the challenges they face.
Barbara was diagnosed with invasive lobular breast cancer in 2001, which left her needing surgery, radiation therapy and chemotherapy. She is currently completing a Master of Public Health online through Charles Darwin University and has worked in various roles at the University of South Australia after starting her career as a primary school teacher. She has been involved with other consumer representative groups and wants to ensure that the consumer voice is heard and reflected in every aspect of care, treatment and follow-up services on the cancer journey. Barbara hopes to see a future in which the needs of the consumer will be at the heart of every decision affecting the quality of care and services provided to reduce patient anxiety and fear.
Pamela hopes that her experience as both a health professional and as a cancer patient will assist others through the cancer journey. Diagnosed in 1998 with Grade III Breast Cancer, Pamela underwent chemotherapy, radiation therapy and drug therapy. She has had many years clinical experience as a Registered General Nurse and Midwife, as well as an Honours Degree in Psychology and a P.H.D.. Pamela was the scholarship recipient to the San Antonio Breast Cancer Symposium USA as patient advocate, consumer advocate on the Curriculum Advisory Committee, RANZCR, the Oncology Education Committee of Cancer NSW and consumer advocate for Breast Cancer Network Australia (BCNA). She looks forward to working with other consumers and members of the radiation profession to improve the experience of all cancer patients.
Sixteen years ago John was diagnosed with Chronic Myeloid Leukaemia. He is a committed and passionate advocate for people affected by cancer. He holds degrees in Accounting and Arts and is a regular speaker at medical conferences in Australia and internationally about cancer policy, advocacy, clinical trials, research and related issues. He was awarded an Honorary Associate of the University of Sydney - School of Medicine in 2009 for work in the promotion of Clinical Trials in Australia and a Recognition Award from the Federal Department of Health in 2011 for - "long standing commitment to advancing the quality of radiation oncology services in this country".
Kerryn was diagnosed with stage one, grade one breast cancer in 2016 and underwent surgery and six weeks of radiation therapy. During part of her treatment Kerryn continued working. Kerryn is passionate about outcomes for students with special needs and has worked with the Western Australia Education Department for 28 years to achieve some excellent outcomes. She has also lived and taught in Canada. With the support of her family through treatment and recovery, Kerryn is again enjoying her favourite activities. In her spare time, Kerryn and her family travel at every opportunity they get and love spending time in the goldfields of Western Australia. As a member of the Consumer Advisory Committee, Kerryn would like to ensure others in a similar position of having breast cancer are fully aware of available treatments and that all patients receive personalised care.
Mary-Ann's husband experienced breast cancer at age thirty-six. Years later Mary-Ann was also diagnosed with breast cancer and underwent surgery, chemotherapy, radiation therapy and Herceptin for treatment. Throughout the course of her treatment Mary-Ann stayed physically and socially active which contributed positively to her recovery. Mary-Ann has spent her career working in various public health administration roles. A diploma in counselling and being a breast cancer survivor has provided a strong foundation for the one-to-one mentoring Mary-Ann now does with breast cancer patients. Mary-Ann is a strong advocate for empowering patients to be actively involved in their care and to make their own informed decisions. She hopes to brings this passion to the Committee to continue improving cancer treatment and service.
Gloria's breast cancer journey began in 2014 when diagnosed with a malignancy in her right breast. After surgery and radiation treatment, in 2016 a malignancy was found in her left breast and another round of surgery and radiation treatment was required. Having experienced the side-effects of cancer, Gloria keeps herself physically well by going to the gym and mentally and socially engaged by volunteering at Wesley Breast Clinic. Prior to cancer, Gloria's professional career was spent working for Weight Watchers for 20 years. The last 10 as the Queensland Manager. Here she educated and motivated hundreds of people to understand and reap the benefits of good nutrition. Gloria is an advocate for wellness through self-care and is passionate about volunteering. She hopes to use her experiences as a cancer patient to speak up for patients and facilitate support resources for cancer patients.
With sincere thanks to previous serving members of the Consumer Advisory Committee: Alvaro Alonco, David Vance (RIP) and Peter Coady (RIP).